1. Tell us a little about yourself: who you are, what you do, and what brought you to Alliance?
I have been at Alliance for 10 years. I had been working in Public Relations for high-fashion companies including Ralph Lauren when I was diagnosed as HIV positive in 2011. I took a break from the industry and wanted to learn more about my diagnosis and found Alliance. Immediately got great connection to services and wanted to give back, to help the HIV-positive community. Like many folks at Alliance, I’ve worn many hats. I’ve worked as a Case Manager at Midtown Central and at Pelham Grand, our supportive housing location. My current role is Prevention Manager, so educating and leading outreach for populations that are at risk for contracting HIV.
2. Why did you feel you needed to “give back” as you put it?
I’ve felt a greater sense of purpose doing this than in my previous career, though I loved that. I never thought HIV would happen to me. The letters HIV seemed like a death sentence, so I put off getting tested even as I noticed changes in my body, like shingles, and I put off getting tested because I was scared. I refused the tests the doctors wanted me to take. But finally, a friend who’s a nurse really encouraged me to take it, and manage my condition. It broke the stigma for me. I realized that I needed those people gently pushing me to get tested, get educated, and stay healthy. I wanted to be that person for others.
3. Can you tell me about a specific person you’ve helped who was struggling with their diagnosis?
As an intake manager, I had one client who was a professor and in denial about his diagnosis. I made sure I spoke to him honestly about what could happen. He felt because of his social status, contracting HIV couldn’t happen to him.
I don’t always feel like I should have to share my story with clients, but in this case and some others, I did, because I was around for the start of the AIDS epidemic in the 80s and lost a lot of friends who would’ve done anything to access the medicine we have now.
I told him I was HIV positive, and he said “Oh my God, you don’t look like you have HIV.” I said, “HIV doesn’t have a face, it looks like everyone.” Well, he let me connect him to medical services. A lot of time, the work is really about breaking down stigma and shame that unfortunately many people have internalized.
4. Shifting gears: how has your work changed during the pandemic?
I was working at Pelham Grand at the time, and our HIV-positive clients really had a tough time because it’s such a social place, and it’s harder to bond, kid around, and build structure virtually or with limited physical interaction.
We did everything we could, and I know the residents appreciated it. There was less in-person socializing, so we tried to be even more accessible for our residents, whether that was arranging telehealth visits for them, or answering late-night calls and emails. Many of the residents are or were in recovery, and the pandemic was hard for them, for obvious reasons.
5. If you could do anything in addition to what you are doing now, what would it be?
I would probably be doing art public relations, like I was before my diagnosis. I love art and I’m a creative person. Creating campaigns for clothing lines, helping at fashion shows, and making creative choices for magazines. It’s still a hobby for me and I do some of that on the side, but I feel more productive by giving back to our HIV-positive community working here. It’s like a calling. Fashion/art is more of a fun side project.
6. Anything else I’ve forgotten to ask?
I’m a social person. I love to be around people. Being away from people due to social distancing really made me appreciate being able to socialize again, and all the people that matter.
Alliance arranged a group chat every Friday for us to just have a safe space to talk. That helped not just me, but others. And Alliance connected us with therapists—which was huge for me.